Helpful resources for Rare Disorders Boston Children’s Hospital European Medicines Agency (EMA) US Food and Drug Administration (FDA) The Genomic Information Commons (GIC) National Center for Biotechnology Information (NCBI) National Organization for Rare Disorders (NORD) Orphanet Disease-specific Organizations and Foundations All Things Kabuki (ATK) National MPS Society National Niemann-Pick Disease Foundation Inc. (NNPDF) Organic Acidemia Association (OAA) National Tay-Sachs & Allied Diseases (NTSAD)